Nevermore: Alicia’s story

From the Alzheimer Society of Toronto: Meet Alicia. Alicia was diagnosed with Alzheimer’s disease 10 years ago. In this beautiful 4-part series, we visit Alicia and her family in their home to get a birds-eye view of the grace, dignity, compassion, and support each of them shares with Alicia and one another.

Alicia’s relationship with her daughter, son-in-law and grandchildren drive the film as they confront the disease head-on and share their story and their struggle. Alicia’s challenges and efforts are palpable, as is her family’s devotion to her. This is a disease that affects everyone in the family and its toll is demonstrable and real. Yet through the loss and heartbreak, we see moments of laughter, lucidity, love and connection.

“How do we help Mom, let alone help ourselves?”

This is an irreversible and progressive brain disorder that slowly destroys memory, thinking skills and eventually, the ability to carry out the simplest tasks. The number of people who have survived Alzheimer’s disease is 0.

When asked why Alicia’s family chose to share their story, her daughter Judy said that she gained insight and emotional strength in sharing her story with other people who are going through the same experience. Her hope is that in helping even one person, Alicia’s memory and connection will live on. Here is her best advice:

“For families that are just learning that their loved one has been diagnosed with dementia or Alzheimer’s, the best advice that I can give based on the experience that we’ve had is to get support. Don’t try to deal with it yourself because it’s going to be unlike anything you’ve ever experienced.”

Alzheimer’s can affect anyone. Every three seconds, someone in the world is currently diagnosed with the disease. If you need any support, more information about their programs and services, or need help navigating through the dementia journey, please contact the Alzheimer Society of Toronto here.

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